CERN Projects
The CERN Foundation is engaged in a range of activities to support patients, caregivers, advocates and medical professionals.
The CERN Foundation is a program of the National Brain Tumor Society and is dedicated to improving the lives of children and adults worldwide diagnosed with ependymoma. We strive to bring awareness to the rare disease and improve the outcome and care of patients through education, referral support, and supported research efforts.
Ependymoma Referrals
CERN routinely connects patients and families with institutions and physicians that specialize in treating ependymoma. We are also happy to make connections between treating physicians and CERN representatives. For more information, click here.
Ependymoma Guide
Now in its 3rd Edition, the Ependymoma Guide provides the basic facts surrounding ependymoma, its diagnosis and treatment. The Ependymoma Guide is available in digital format on the CERN Foundation website and the National Brain Tumor Society website.
Ependymoma Research Projects
- National Brain Tumor Sciety awarded Johannes Gojo, MD, PhD, of Medical University of Vienna (Medizinischen Universität Wien), the recipient of the first-ever CERN PFA Ependymoma Translational Research Award.
- Ependymoma Research Effort Included in NBTS Flagship Research Project, DNA Damage Response (DDR) Consortium.
- CERN Postdoctoral Basic Science Research Fellowship: This fellowship provides support for two years of funding to promising postdoctoral researchers whose focus is on ependymoma research. Read about our current fellows research.
Professional Development
The CERN Foundation supports the development of dedicated ependymoma content during the two largest international neuro-oncology conferences: the annual meeting of the Society for Neuro-Oncology and the Biennial International Symposium on Pediatric Neuro-Oncology.
Clinical Trials
CERN offers information about ongoing clinical trials and we provide education and direction to the ependmoma community. Our hope in with these trials is to collect critical data that will advance the treatment of ependymoma.
Ependymoma Awareness Day
Recognized and celebrated around the world, the annual Ependymoma Awareness Day has become the flagship event in the ependymoma community. The event culminates in a mass butterfly release that is videotaped and streamed to viewers around the globe. The CERN awareness and outreach team also partners with other groups to support awareness efforts in their local area. To learn more about past Awareness Day events and how to get involved in the future, click here.
Support the work of CERN
With your generous support, we will continue to expand our efforts to improve the care and outcome of people with ependymoma.