Ependymoma Awareness Video

Ependymoma Awareness Day (EAD) was established in 2012 by the CERN Foundation as part of a global effort to shine a light on this poorly understood disease. Our goal with Ependymoma Awareness Day is to increase public recognition of this rare tumor, highlight the importance of an accurate diagnosis, and the urgent need for better targeted treatments in order to improve the outcomes for those living with this disease.

“I watched and thought - if only THIS is what people would see when they Google 'ependymoma'!!! Such great information!” Beth


Connecting you with other ependymoma patients and caregivers.

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Where to Start

  • Ependymoma Basics

    If you or a loved one has just been diagnosed, we are here to help you get the facts on ependymoma. Learn More

  • Support

    Ways you can help care for yourself or a loved one during and after ependymoma treatment. Learn More

  • Diagnosis

    Learn how ependymoma is diagnosed, what it looks like and what to do after being diagnosed. Learn More

  • Resources

    Find resources from other patients and caregivers and experts in the medical community. Learn More

  • Treatment

    To make the best ependymoma treatment decisions, you need to understand all of your options. Learn More

  • Get Involved

    Ways you can help us expand our understanding of ependymoma, raise additional funding, or create more awareness of ependymoma. Learn More

“The CERN Foundation provided me with a wealth of knowledge. There is so much information; between research, studies, and families’ stories. I never had to feel alone. I took refuge in the information provided in those early days of my son’s diagnosis. It was scary, but with knowledge, I felt I had taken some of the power back. I wasn’t quite as helpless.”

Amy F.

Amy F.

CERN Headlines

CERN Foundation Releases Ependymoma Community Blog Series

CERN Foundation Releases Ependymoma Community Blog Series

Featuring a collection of articles written by members of the ependymoma community. Some authors are ependymoma survivors and others are care partners. They share their advice to help others with ependymoma cope with their illness.

  • Jun14

    Ependymoma Guide - Third Edition Released
    The CERN Foundation, a program of the National Brain Tumor Society, recently released the third edition of the Ependymoma Guide. The goal of this guide is to provide basic facts about ependymoma to increase education and awareness about the rare disease.

  • Apr30

    Hope Themed Creative Writing Project Raises Awareness for Ependymoma
    In preparation for the 2024 Ependymoma Awareness Day event, the CERN Foundation issued a call for creative writing pieces on the theme of hope. Ependymoma community members from all over the world submitted original short stories and poems in order to raise awareness for the rare disease and recognize the importance of hope. Often, people use creative writing to express thoughts and feelings that might otherwise be difficult to share. In addition, writing can help a person process their experience and offer overall wellness benefits. Sharing these individual stories with the larger community provides support and a reminder that you aren’t alone. Submissions were used for various awareness activities and shared with the community.

  • Feb7

    New Grant Aims to Jumpstart Treatment Development for Patients with Rare Pediatric Ependymal Tumors
    National Brain Tumor Society (NBTS) is excited to announce that Johannes Gojo, MD, PhD, of Medical University of Vienna (Medizinischen Universität Wien), is the recipient of the first-ever CERN PFA Ependymoma Translational Research Award.

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